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North Santa Rosa

Rayland Camp

Rayland Camp

 

 

 

 

 

 

 

Rayland Reese Camp Was born on Sept 19, 2012 @ 4lbs 4oz 16″ long.  He is the son of Reese (father) who was born in Ft. Walton Beach and attended Fort Walton High and Brittney (mother) grew up in Pace and attended both Pace and Central High of Allentown. Recently Brittney has just graduated from Fortis College with her dental certificate but is currently a stay at home mom. Rayland also has two older siblings, Shyanne and Pistol. At this time his family is  traveling to and from the Milton/Pace area for his treatments at Shands which is located within Gainesville, Fl.

Rayland was born with a rare condition called Rhizomelic Chondrodysplasia Punctata aka RCDP or Rhizo, currently there are only about 50 cases known world wide and it occurs in 1 out of every 100,000 live births. Rayland’s genetics doctor has only seen 2 of these children in his life time. There has never been one born in the Pensacola area, his condition is a rare form of dwarfism. He has short upper arms, short upper legs, stippling on his bones (small holes) contractures, cataracts, he has hearing loss, most studies say most of these children won’t live past 2 and a very small percentage make it to 10, however there are more and more that are between the ages of 6-10 and still doing well.

These children do not walk and talk but they do show that they do show signs of emotions and some of them may say a few things. They all have feeding trouble, and Rayland has the g tube.

Friends of the family are organizing  several upcoming fundraisers, in which all proceeds will go towards the family. They are currently looking for a location preferably between Milton/Pace  to set up and have a benefit dinner (with full kitchen) where all meals purchased go towards the Camp Family. If you know of a location please contact

For more information on this condition you can visit www.rcdpkids.comor contact Campkids61012@gmail.com

 

Posted by on Dec 3 2012. Filed under Local, Top News. You can follow any responses to this entry through the RSS 2.0. You can leave a response or trackback to this entry

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